Holy Shit! I mean, I know that no-one reads this blog, but if you happen to be a person reading this, have you checked out Peggy Munson? Because I think you should! She's a writer, artist, activist, and invalid of the queer/Chronic Fatigue Syndrome type. I just happened upon her blog from another blog, and it is seriously inspiring.
The idea that we can take a lot of inspiration and tactics from the AIDS movement is right on. How many of us have read endless articles about CFS/ME and XMRV research not getting taken seriously and just felt so defeated and helpless? I know I've thought many times that it would probably be better for my mental health to just stop reading them entirely, stop paying any attention to the medical establishment, and just get on with my sick life as best as I can without hope for getting better. Acceptance is great and all, but science and medicine have real potential for helping us. Particularly now, since discovery of XMRV and the growing scientific consensus that this is a viral condition.
Read Peggy Munson's eloquent appeal to get active in whatever creative ways we can come up with from our beds and houses, using the history of AIDS activism as our guide. She has also started a documentation and visibility website called the The EXit Project, along with editing a book called "Stricken: Voiced from the Hidden Epidemic of Chronic Fatigue Syndrome."
